this year.
This information comes from the SMAT itself and explains a bit about the disease : -
“What is Spinal Muscular Atrophy (SMA)?
Children born with the inherited condition called Spinal Muscular Atrophy (SMA) lack a gene which sends messages from their brain to muscles around the spine that control moving and breathing. There are 4 types of SMA that vary greatly in severity. In its most severe (and common) form, SMA is the leading genetic killer of children under 2. Improvements in care mean that people with milder forms of the condition are living much longer but many are never able to walk and the progressive nature of the condition means that their muscles become progressively weaker over time, leading to greater risk of severe respiratory problems. Although SMA is still classified as rare, there are around 2,500 people in the UK with the condition and 1 in 40 of us is a carrier (1.5 million people). There is currently no treatment or cure for SMA.”
Find out more by going to http://www.smatrust.org
Racers
owner returns to the ice
London
Haringey Racers have today announced that owner Dave Richards has signed to
return as a player this season following nearly a year out of the game.
Dave says that he is looking forward to his return on the 3rd October especially given the cause that we are raising money for, and is immensely proud to be playing in memory of his little girl. He is also looking forward to be playing other games in the season when the time arises and is back over from Spain.
"Training so far has been hard work but rewarding and its been great to be back in the room with the boys, some old faces and some new. With 2 seasons now under our belt, we have a great coaching team in place and a great roster of players and this could well be our year".
Dave says that he is looking forward to his return on the 3rd October especially given the cause that we are raising money for, and is immensely proud to be playing in memory of his little girl. He is also looking forward to be playing other games in the season when the time arises and is back over from Spain.
"Training so far has been hard work but rewarding and its been great to be back in the room with the boys, some old faces and some new. With 2 seasons now under our belt, we have a great coaching team in place and a great roster of players and this could well be our year".